Cure VCP Disease Patient Conference - 2019

April 12, 2019 @ 1:00PM — April 13, 2019 @ 4:30PM

Inaugural patient conference to bring together patients, caregivers and researchers!

Cure VCP Disease Patient Conference - 2019 image

Register today!

There are currently no tickets available for this event, but you can still make a donation.

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Join us for our first ever patient conference focused on VCP Disease. We look forward to bringing together patients, caregivers and researchers to discuss our challenges as well as the latest research developments in our disease.

Tentative Itinerary

Friday, April 12, 2019 - Parkway Hotel

  • 1:00 PM - 5:00 PM - Dr. Chris Weihl and team will offer functional outcome assessment testing to assist in designing future/imminent clinical trials.
  • 6:00 PM - 9:00 PM - Dinner & Entertainment (included in price of ticket)
Saturday, April 13, 2019 - Seminar Room B - Eric P. Newman Education Center
  • 8:00 AM - 12:00 PM - Medical and scientific updates & "Understanding the New Normal"
  • 12:00 PM - 1:00 PM - Lunch provided
  • 1:00 PM - 4:15 PM - Physical and occupational therapy discussions, emotional health and Q&A panel.

For lodging reservations: Washington University St. Louis, Missouri Parkway Hotel 314.256.7777 Group # 8803